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special feature: RARE DISEASE DAY - 2025

Patient voices must be at the heart of innovation.

We’re proud to have collaborated with Leiden Bio Science Park to create this Rare Disease Day 2025 video—because real impact happens when patients, industry, and science work together. Rare diseases require more than breakthroughs; they need a harmonized ecosphere—where every link in the chain, from supply to pharma to patient, is connected with purpose.

Empowering Change

Social responsibility plays a vital role in cultivating trust and strengthens the relationship between organizations and their communities, promoting a more sustainable and equitable society. Discover more about our advocacy initiatives and unwavering commitment to dwarfism awareness.

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INITIATIVES EMPOWERING ACTION

CALL TO ACTION

EURORDIS WEBINAR: embracing differences & The importance of mental health

EURORDIS WEBINAR: embracing differences & The importance of mental health

 Overcoming barriers to the inclusion of people with dwarfism demands a united effort. Empowered By Us urges all stakeholders to address and implement key milestones to dismantle systemic obstacles, fostering a society that recognizes our rights and promotes inclusion. 

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EURORDIS WEBINAR: embracing differences & The importance of mental health

EURORDIS WEBINAR: embracing differences & The importance of mental health

EURORDIS WEBINAR: embracing differences & The importance of mental health

 In her keynote presentation, Empowered By Us' Initiative Leader, Sophie H. Turner, explores the emotional journey of living with Dwarfism (Achondroplasia) while highlighting the societal barriers individuals face. The presentation delves into the psychology of activism, emphasizing the importance of finding identity beyond the condition and empowering others to embrace their uniqueness in advocating for change. 

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resilience in action

EURORDIS WEBINAR: embracing differences & The importance of mental health

resilience in action

 Empowered By Us' Initiative Leader, Sophie H. Turner, candidly discusses the challenges she has faced throughout her life, from societal stigma and childhood struggles to building a successful career across continents. 

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